Looking for a good cause to support? My cousin and her family have organized the Stepping Out to Cure Scleroderma event in Syracuse, June 28, 2014. This 5k Run and 1 Mile Walk is designed to create awareness about scleroderma and provide those affected by it to connect with one another as well as raise funds to find a cure.
What is Scleroderma?
Scleroderma is a chronic, often progressive, autoimmune disease in which the immune system attacks its own body.
Scleroderma means “hard skin.” It can cause a thickening and tightening of the skin. In some cases, it causes serious damage to internal organs including the lungs, heart, kidneys, esophagus and gastrointestinal tract. As scarring, or sclerosis, of these organs and organ systems progress, they work less effectively, and can lead to organ failure and death. Some medications and treatments can help with certain symptoms, but there is no cure for scleroderma. The disease affects about 300,000 people across the U.S. In comparison, approximately the same number of people are affected by multiple sclerosis
Event Info:
This year’s event will be held June 28, 2014, 7:00 a.m. Online registration is available HERE. Pre-registration is $20.00, or register the morning of for $25.00. The race start and finish line will be at the Syracuse Police Department parking lot. Runner/participant packets may be picked up Friday, June 27, 2014 from 10:00 a.m. – 2:00 p.m. at the Syracuse Community Center (1912 West 1900 South).
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This was such a great idea and a fun run to participate in! Will this be happening again in 2015??
Hi Mary! I believe so! My cousin is actually the one who does it, so I’ll find out for sure!
Yes, it will be happening again in June. They’re not sure of an exact date yet, but we will post about it when they do.